BACKGROUND: Differentiating dementia from baseline level of functioning is difficult among people with severe/profound intellectual (and multiple) disabilities. Moreover, studies on observable dementia symptoms are scarce. This study examined (a) the relevance of dementia diagnosis, (b) observable symptoms …

In Intellectual Output 1 of the SMILES project, researchers from Belgium (Flanders), Netherlands and Spain conducted desk research to describe the current developments for each country around disinformation, particularly those related to the Covid-19 pandemic. In part 2 of the research, they identified …

Background: Adults with cerebral palsy (CP) may experience an increasing impact of their disability on daily life and this may interfere with their citizenship. Citizenship is a layered construct. Next to formal and theoretical significations, and civil rights acts such as the UN Convention on the Rights …

The values of patient autonomy and community participation have become central in health care. However, care practices involve a plurality of possibly conflicting values. These values often transgress the borders of the individual professional–client relationship as they involve family members, other …

Genoeg bewegen en gezond eten is belangrijk voor iedereen. Ook voor mensen met een matige tot zeer ernstige verstandelijke beperking. Zij hebben hierbij hulp nodig van begeleiders en hun omgeving. Het onderzoeksnetwerk De Krachten Gebundeld heeft onderzoek gedaan naar een gezonde leefomgeving. Daarna …

Presentation about the research of the changing roles of the adult siblings of brothers or sisters with profound intellectual disabilities. The aim of this research project is to explore the roles siblings fulfill, their experiences and needs concerning these roles, and if and how their involvement contributes …

In light of current worldwide developments, the conference theme “Value Diversity” explicitly refers to the changes we need to see. This contribution is about Life expectancy of people with a severe or profound intellectual disability. Their life expectancy increases, which contributes to the risk of …

Background: Behaviour change techniques (BCTs) can be employed to support a healthy lifestyle for people with intellectual disabilities. The aim of this study is to determine whether and which BCTs are used by direct support professionals (DSPs) for supporting healthy lifestyle behaviour of people with …

Aim Life expectancy of people with severe or profound intellectual disability (SPID) increases, which contributes to the risk of developing dementia. However, early detection and diagnosing dementia is complex, because of their low-level baseline functioning. Therefore, the aim is to identify observable …