Surviving a burn can dramatically alter a child’s life, yet few studies examined long-term health-related quality of life (HRQL). This study assessed HRQL 5–7 years post-burn in children with mild/intermediate and severe burns and identified associated factors. Parents of children (5− < 18 years) who …

This planned sub-study was part of a prospective intervention study in patients on hemodialysis with a high serum phosphate concentration and high PBM pill burden. Functional, communicative, and critical medication-related HL were assessed using the Recognizing and Addressing Limited Pharmaceutical Literacy …

Objective: We aim to provide a literature overview on patient‐reported barriers and facilitators to participation in Shared Decision Making (SDM) within the setting of oncology. Methodology: Within the set of selected studies for a larger qualitative meta‐summary, using five databases, we selected the …

Background Diet-related morbidity is high in kidney transplant recipients (KTR), but detailed dietary assessments are limited. In this study, we evaluated diet and dietary guideline adherence in KTR compared to the general population, and identified KTR-specific dietary determinants. Methods Cross-sectional …

A dissertation to obtain the degree of doctor at the University of Twente on 17 December 2024. This dissertation investigates how music can enrich the lives of people with dementia and how designers can better address their needs. Music aids in relaxation, activation, and maintaining identity, yet accessibility …

Objectives Providing an overview of the clinimetric properties of the steep ramp test (SRT), a short-term maximal exercise test, to assess cardiorespiratory fitness (CRF), describing its underlying physiological responses, and summarizing its applications in current clinical and research practice. Data …

The thesis investigates the effects of rising water consumption costs on small-scale farmers in Mathioya District, Murang’a County, Kenya. It aims to identify the challenges these farmers face due to the increased cost of water for consumption exacerbated by climate change and offers strategies for equitable …

This study tries to understand the power of knowledge within collaborative care networks to provide insights for designing successful collaboration within care networks by combining intersectionality and epistemic (in)justice. Becoming an informal carer for someone with an acquired brain injury (ABI) …

Background : Engaging families in postsurgical care is potentially beneficial for improving cancer patient outcomes and quality of care. The authors developed a family involvement program (FIP) and in this study, the authors aim to evaluate the impact of the FIP on family caregiver burden and well-being. …