Background Family participation in essential care may benefit patients and relatives. Aims To examine the needs, perceptions and preferences of health care providers about family participation in essential care in the adult intensive care unit. Study design A qualitative descriptive study using inductive …

Doel De mate waarin mensen met verstandelijke en visuele beperkingen technologie kunnen gebruiken is afhankelijk van de mate van ondersteuning die ze krijgen. Er is echter een gebrek aan kennis over de relatie tussen de constructen inspanningsverwachting, attitudes en gedragsintenties van ondersteuningspersonen …

The use of social networking and e-health technology through mobile (and other) devices, like smartphones and tablets, has been increasing in the last 20 years. This is equally true for people in marginalized situations, like homeless people. Earlier research shows that the majority of homeless people …

To determine the effect of a standardized program for family participation in essential care activities in the ICU on symptoms of anxiety, depression, posttraumatic stress and satisfaction among relatives, and perceptions and experiences of ICU healthcare providers (HCPs). A standardized program to facilitate …

Background: Shared decision-making plays an important role in ensuring value-based healthcare in cardiac surgery. However, the personal situations of patients in cardiac care have not been widely explored, and thus, little is known about the decision-making experiences of patients and their relatives …

In the intensive care unit (ICU) relatives play a crucial role as surrogate decision-makers, since most patients cannot communicate due to their illness and treatment. Their level of involvement in decision-making can affect their psychological well-being. During the COVID-19 pandemic, relatives’ involvement …

Background: It is important that healthcare professionals recognise cognitive dysfunction in hospitalised older patients in order to address associated care needs, such as enhanced involvement of relatives and extra cognitive and functional support. However, studies analysing medical records suggest …

INTRODUCTION: There is a growing interest in the involvement of family members of older patients with cancer in decision-making processes. The aim of this study is to identify how and to what extent family members, together with patients and physicians, are involved in triadic decision-making processes …

In the Netherlands, client and family participation in care for people with intellectual disabilities has been in vogue for a long time, and increasingly receives attention (KPMG and Vilans 2017). However, the perspective and experiential knowledge of service users and relatives is often still insuBiciently …

COVID-19 has complicated grieving experiences. Rich qualitative description of these experiences is lacking. We interviewed 10 bereaved relatives (mainly daughters) 2–3 times each: shortly after their relative died in the first wave of COVID-19 pandemic, and after 12 and 18 months (29 interviews in total). …