Background: Although particular technologies can enhance the quality of life (QoL) of people with profound intellectual and multiple disabilities (we use the term pervasive support needs), their objectives and outcomes are understudied. A systematic literature review was therefore conducted to explore …

Hoofdstuk 8 in Wat werkt als je samenwerkt - deel 2 In dit afsluitende hoofdstuk worden inzichten en voorbeelden uit deze publicatie gekoppeld aan de uitkomsten van een Delphimethode, een onderzoeksmethode waarbij experts anoniem worden bevraagd, in dit geval over effectieve samenwerking tussen schoolvakken …

Background For families with adolescent children, the transition to adulthood is usually challenging. This period may be extra demanding for families with a child with profound intellectual and multiple disabilities due to the child's strong and persistent support needs. To support these families during …

Mensen met een verstandelijke beperking worden steeds ouder. Deze veroudering gaat vaak samen met inactiviteit, ongezonde voedingspatronen en gezondheidsproblemen die al op jongere leeftijd ontstaan. Dit leidt bij mensen met een verstandelijke beperking tot een groter risico op leeftijds- en leefstijlgerelateerde …

Background Adult siblings are important in the lives of individuals with profound intellectual disabilities, especially as parents age. However, little is known about the roles they assume. Method We examined these roles among 58 participants from the Netherlands, who completed an online questionnaire. …

Introduction Although the prevalence of dementia increases among people with severe/profound intellectual (and multiple) disabilities (SPI(M)D), dementia in people with SPI(M)D is not yet fully understood. Therefore, this study aimed to characterize the natural history of dementia in people with SPI(M)D, …

IMPORTANCE People with a severe mental illness (SMI) have a life expectancy reduced by 10 to 20 years compared with the general population, primarily attributable to cardiometabolic disorders. Lifestyle interventions for people with SMI can improve health and reduce cardiometabolic risk. OBJECTIVE To …

Background: Chronic constipation is common in people with intellectual disabilities, and seems to be highly prevalent in people with severe or profound intellectual and multiple disabilities (SPIMD). However, there is no current widely accepted definition for the constipation experienced by these individuals. …

In disability research, there is an increased focus on the well-being of families with a child with a disability, also known as family quality of life (FQOL). However, the well-being of families with a child with profound intellectual and multiple disabilities (PIMD) has not yet been explored, even though …