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Marfan syndrome in childhood: parents' perspectives of the impact on daily functioning of children, parents and family; a qualitative study

Warnink-Kavelaars, Jessica; Beelen, Anita; Dekker, Sarah; Nollet, Frans; Menke, Leonie A.; Engelbert, Raoul H.H.

Background: Marfan syndrome (MFS) is a heritable connective tissue disease caused by a defect in FBN1. The diagnosis is based on the revised Ghent criteria. The main features involve the cardiovascular, musculoskeletal, ophthalmic, pulmonary systems and facial features. Although the clinical manifestations …

2019AlgemeenArtikel

Fear of movement in patients referred to cardiac rehabilitation

Keessen, P (Lectoraat Oefentherapie); Den Uijl, I; Ter Hoeve, N; Visser, B (Lectoraat Oefentherapie); Latour, C; Sunamura, M; Jorstad, HT; Scholte Op Reimer, WJM; Kraaijenhagen, RA; Van Den Berg-Emons, HJG

Introduction: Patients with kinesiophobia (fear of movement) avoid physical activity. Avoidance of physical activity is linked to adverse cardiac events and thus needs to be targeted. However, there is no contemporary measurement tool to assess kinesiophobia in cardiac patients. Therefore data on prevalence …

2019AlgemeenArtikel

Setting meaningful goals in rehabilitation: rationale and practical tool.

J.J.H. Dekker; V. de Groot; A.M. ter Steeg; J. Vloothuis; J. Holla; E. Collette; Ton Satink; L. Post; S. Doodeman; E. Littooij

2019AlgemeenArtikel

Activity resumption after acquired brain injury: the influence of the social network as described by social workers.

S. Jellema; Sabine van Erp; Ria Nijhuis-van der Sanden; Rob van der Sande; Esther Steultjens

2019AlgemeenArtikel

Factors influencing the implementation of Home-Based Stroke Rehabilitation: Professionals' perspective.

Dinja van der Veen; C.M.E. Döpp; P.C. Siemonsma; Ria Nijhuis-van der Sanden; Rob van der Sande

2019AlgemeenArtikel

Valued activities and informal caregiving in stroke: a scoping review.

S. Jellema; M.A.M. Wijnen; Esther Steultjens; Ria Nijhuis-van der Sanden; Rob van der Sande

2019AlgemeenArtikel

Stumbling, struggling, and shame due to spasticity: a qualitative study of adult persons with hereditary spastic paraplegia.

Hans Kerstens; Ton Satink; M.J. Nijkrake; Bert de Swart; B.J.H. van Lith; A.C.H. Geurts; Ria Nijhuis-van der Sanden

2019AlgemeenArtikel

Cross-cultural adaptation and measurement properties of the Dutch knee self efficacy scale (K-SES)

Wim van Lankveld; N. van Melick; B. Habets; Y. Pronk; Bart Staal; Robert van Cingel

2019AlgemeenArtikel

"Everyone sees you sitting there struggling with your food": experiences of adolescents and young adults with cerebral palsy

Lianne Remijn; Lenie van den Engel-Hoek; Ton Satink; Bert de Swart; Ria Nijhuis-van der Sanden

Objective: The impact of difficulties with eating and drinking in adolescents and young adults with cerebral palsy is unknown. The purpose of this study is to find out which difficulties adolescents and young adults with cerebral palsy experience with eating and drinking in daily life and how they deal …

2019AlgemeenArtikel

Reflections of patients and therapists on a multidisciplinary rehabilitation programme for persons with brachial plexus injuries

R. Janssen; Ton Satink; J Ijspeert; N. van Alfen; JT Groothuis; T.L. Packer; Edith Cup

Purpose: There is lack of knowledge, evidence, and guidelines for rehabilitation interventions for persons with neuralgic amyotrophy (NA) or brachial plexus pathology. A first pilot study, evaluating the effect of an integrated rehabilitation programme, showed improvements in activity and participation …

2019AlgemeenArtikel

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