Chapter 1: General introduction. A specific group of people with disabilities includes individuals with profound intellectual and multiple disabilities (PIMD). However, individuals with PIMD form a heterogeneous group regarding the origins of their underlying conditions leading to profound disabilities …

Pregnancy and early parenthood mark a transformative period where women become caregivers and assume a new role with new responsibilities. While often portrayed positively, the transition to motherhood can be overwhelming. This is especially true for women living in adverse circumstances, presenting …

Background: Parents of preterm infants often face challenges in transitioning from hospital to home, requiring reliable and accessible information to support their caregiving. Mobile health interventions have the potential to supplement postdischarge education and empower parents by providing tailored, …

Background:   Intellectual disability (ID) is a developmental disorder that causes considerably below-average intellectual performance and adaptive behaviour. In the context of the present study, families raising a child with ID are reported to experience multiple challenges that appear not to be well …

Background : Engaging families in postsurgical care is potentially beneficial for improving cancer patient outcomes and quality of care. The authors developed a family involvement program (FIP) and in this study, the authors aim to evaluate the impact of the FIP on family caregiver burden and well-being. …

In the final stage of people’s life, family caregivers spend an average of 26 hours a week providing informal care at home. While this care can be rewarding, it can also lead to overburdening and increase the need for support. Despite the efforts of healthcare providers, many family caregivers feel that …

BACKGROUND: Informal care is an essential part of support provided in the homecare setting. To ensure effective healthcare provision, good communication and collaboration between informal and formal care providers are crucial. To achieve this aim, it is necessary to have a clear understanding of the …

Vroegtijdige detectie van agitatie bij mensen met dementie kan leiden tot tijdige interventies, waardoor verslechtering van de situatie wordt voorkomen en de kwaliteit van leven wordt verbeterd. De opkomst van multimodale detectie en de vooruitgang in kunstmatige intelligentie maken het haalbaar om technologie …

BACKGROUND: Acute admission to an intensive care unit (ICU) can negatively affect quality of life for patients and their relatives. Relatives play an important caregiving role after the patient's admission. More knowledge and understanding of their needs are necessary as the patient transitions home. …