With age, people often develop multiple health problems, chronic illnesses, and frailty. For geriatric adults with frailty, there is a complex interplay of medical, psychological, cognitive, functional, and social issues. As a result, even a minor medical event can disrupt the delicate balance of their …

PURPOSE: To gain a rich understanding of the experiences and opinions of patients, healthcare professionals, and policymakers regarding the design of OGR with structure, process, environment, and outcome components. METHODS: Qualitative research based on the constructive grounded theory approach is performed. …

Chapter 1: General introduction. A specific group of people with disabilities includes individuals with profound intellectual and multiple disabilities (PIMD). However, individuals with PIMD form a heterogeneous group regarding the origins of their underlying conditions leading to profound disabilities …

Pregnancy and early parenthood mark a transformative period where women become caregivers and assume a new role with new responsibilities. While often portrayed positively, the transition to motherhood can be overwhelming. This is especially true for women living in adverse circumstances, presenting …

The importance of hearing parents of deaf and hard-of-hearing (DHH) children learning sign language is well documented. However, parents face many challenges in this learning process. This study investigates the experiences of Dutch hearing parents learning Dutch Sign Language (NGT) or Sign-supported …

Background and aim Addiction problems also affect the lives of family members. This study aims to examine: (1) young adult family members’ experiences with informal and professional support in coping with the impact of relatives’ addiction problems and (2) how these experiences evolve over time. Method A …

Research collaboration between practitioners and research professionals aims to develop both practice and knowledge. However, a tension can arise between these objectives: to preserve local relevance, the content, form, and timing of data collection may vary between cases, complicating the comparability …

Research collaboration between practitioners and research professionals aims to develop both practice and knowledge. However, a tension can arise between these objectives: to preserve local relevance, the content, form, and timing of data collection may vary between cases, complicating the comparability …

Background: the global population is ageing. As older people become more susceptible to frailty, an increase in frailty prevalence is also expected. Although frailty has been defined before in research, older peoples’ perceptions of frailty do not always coincide with those used in research or medical …

This study tries to understand the power of knowledge within collaborative care networks to provide insights for designing successful collaboration within care networks by combining intersectionality and epistemic (in)justice. Becoming an informal carer for someone with an acquired brain injury (ABI) …