In het veranderingsproces naar samen beslissen en passende zorg is het perspectief vanuit de patiënt, en de naasten, fundamenteel. Stichting FCIC (Family and patient Centered Intensive Care), waaronder patiëntenorganisatie IC-Connect, heeft in nauwe samenwerking met het Erasmus MC, HAN University of …

Family participation in essential care may be beneficial for both ICU patients and relatives [2]. It may also improve the patient’s comfort, safety and quality of care [5]. Furthermore, relatives may feel less powerless during the patient’s ICU stay when participating in care [2]. Most ICU healthcare …

BACKGROUND: Healthcare professionals in the hospital setting frequently assume primary caregiving responsibilities, which often leads family members to perceive this as standard practice during hospitalization. This dynamic may create a gap between actual and desired levels of family involvement. The …

By 2050, the proportion of the world’s population that is over 60 will nearly double from 12% to 22%, representing nearly 2 billion older people worldwide. In response, the United Nations declared 2021–2030 to be the Decade of Healthy Aging, aiming to improve the lives of older people, their families, …

Dit hoofdstuk behandelt tal van onderwerpen uit de dagelijkse praktijk op de intensive care. Allereerst belichten we het assessment en de eerste opvang van de vitaal bedreigde patiënt volgens de ABCDE-systematiek. Vervolgens de aandachtspunten en wettelijke eisen die gesteld worden aan rapportage en …

For the elderly a major decline in health often entails a dramatic shift in living conditions. One of the harshest aspects is the loss of social context. Based on experiences in her own family, the designer sets out to redefine the puzzle of health, care and social context. By conceiving the needs in …

As migrant populations age, the care system is confronted with the question how to respond to care needs of an increasingly diverse population of older adults. We used qualitative intersectional analysis to examine differential preferences and experiences with care at the end of life of twenty-five patients …

In the Netherlands, where this study was conducted, there are around 800,000 family carers of people with dementia. Research into the needs and priorities of people with dementia and their family carers is crucial for developing tailored care and meaningful support. However, current research lacks attention …

The study explored how chronic sorrow in parents of disabled children impacts everyday interactions between parents and professionals in caregiving contexts. Chronic sorrow, characterized by ongoing feelings of grief and loss in parents, related to their child’s disability, is increasingly recognized …

Chapter 1: General introduction. A specific group of people with disabilities includes individuals with profound intellectual and multiple disabilities (PIMD). However, individuals with PIMD form a heterogeneous group regarding the origins of their underlying conditions leading to profound disabilities …