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Healthcare needs, expectations, utilization, and experienced treatment effects in patients with hereditary spastic paraplegia: a web-based survey in the Netherlands

Hans Kerstens; B.J.H. van Lith; M.J. Nijkrake; Bert de Swart; LAC van den Bemd; RJEM Smeets; F Klemens; BPC van de Warrenburg; P.J. van der Wees; A.C.H. Geurts

Background We aimed to identify healthcare needs, expectations, utilization, and the experienced treatment effects in a population of Dutch patients with hereditary spastic paraplegia (HSP). Methods We distributed an online questionnaire among 194 adult persons with HSP in the Netherlands, of which 166 …

2021AlgemeenArtikel

Recognising and Developing Effective Workplace Cultures Across Health and Social Care that are Also Good Places to Work

Kate Sanders; Jonathan Webster; Kim Manley; Shaun Cardiff (Onderzoeker)

Delivering health and social care services across different settings is complex, multifaceted and constantly changing and evolving. The culture in which care is experienced by all at the point of contact is fundamental to the development of person‐centred relationships. Factors that enable effective …

2021GezondheidBoek

The NUPHAC-EU Framework for Nurses’ Role in Interprofessional Pharmaceutical Care

Elyne De Baetselier (Onderzoeker); Bart Van Rompaey (Onderzoeker); Nienke Dijkstra (Onderzoeker); Carolien Sino (Onderzoeker); Kevin Akerman (Onderzoeker); Luis M da Cunha Batalha (Onderzoeker); María I D Fernández (Onderzoeker); Izabela Filov (Onderzoeker); Vigdis Abrahamsen Grøndahl (Onderzoeker); Jana Heczkova (Onderzoeker); Ann Karin Helgesen (Onderzoeker); Sarah Keeley (Onderzoeker); Petros Kolovos (Onderzoeker); Gero Langer (Onderzoeker); Sabina Ličen (Onderzoeker); Manuel Lillo-Crespo (Onderzoeker); Alba Malara (Onderzoeker); Hana Padyšáková (Onderzoeker); Mirko Prosen (Onderzoeker); Dorina Pusztai (Onderzoeker); Bence Raposa (Onderzoeker); Jorge Riquelme-Galindo (Onderzoeker); Jana Rottková (Onderzoeker); Francesco Talarico (Onderzoeker); Styliani Tziaferi (Onderzoeker); Tinne Dilles (Onderzoeker)

Clear role descriptions promote the quality of interprofessional collaboration. Currently, it is unclear to what extent healthcare professionals consider pharmaceutical care (PC) activities to be nurses’ responsibility in order to obtain best care quality. This study aimed to create and evaluate a framework …

2021GezondheidArtikel

Perspectives of nurses' role in interprofessional pharmaceutical care across 14 European countries

Elyne De Baetselier (Onderzoeker); Tinne Dilles (Onderzoeker); Luis M Batalha (Onderzoeker); Maria I Fernandes (Onderzoeker); Nienke E Dijkstra (Onderzoeker); Izabela Filov (Onderzoeker); Juliane Friedrichs (Onderzoeker); Vigdis A Grøndahl (Onderzoeker); Jana Heczkova (Onderzoeker); Ann Karin Helgesen (Onderzoeker); Sue Jordan (Onderzoeker); Sarah Keeley (Onderzoeker); Thomas Klatt (Onderzoeker); Petros Kolovos (Onderzoeker); Veronika Kolirova (Onderzoeker); Sabina Ličen (Onderzoeker); Manuel Lillo-Crespo (Onderzoeker); Alba Malara (Onderzoeker); Hana Padysakova (Onderzoeker); Mirko Prosen (Onderzoeker); Dorina Pusztai (Onderzoeker); Jorge Riquelme-Galindo (Onderzoeker); Jana Rottkova (Onderzoeker); Carolien G Sino (Onderzoeker); Francesco Talarico (Onderzoeker); Styliani Tziaferi (Onderzoeker); Bart Van Rompaey (Onderzoeker)

Objectives: To understand healthcare professionals' experiences and perceptions of nurses' potential or ideal roles in pharmaceutical care (PC). Design: Qualitative study conducted through semi-structured in-depth interviews. Setting: Between December 2018 and October 2019, interviews were conducted …

2021GezondheidArtikel

Barriers and facilitators for shared decision making in older patients with multiple chronic conditions: a systematic review

Pel-Littel, Ruth E.; Snaterse, Marjolein (Faculteit Gezondheid); Teppich, Nelly Marela; Buurman, Bianca M.; van Etten-Jamaludin, Faridi S.; van Weert, Julia C. M.; Minkman, Mirella M.; Scholte op Reimer, Wilma J. M.

Background The aim of this study was to describe barriers and facilitators for shared decision making (SDM) as experienced by older patients with multiple chronic conditions (MCCs), informal caregivers and health professionals. Methods A structured literature search was conducted with 5 databases. Two …

2021AlgemeenAndersoortig materiaal

Feasibility of a home-based interdisciplinary rehabilitation program for patients with Post-Intensive Care Syndrome: the REACH study

Major, Mel E.; Dettling-Ihnenfeldt, Daniela; Ramaekers, Stephan P.J. (Faculteit Gezondheid); Engelbert, Raoul H. H. (Faculteit Gezondheid); van der Schaaf, Marike (Faculteit Gezondheid)

Background Survivors of critical illness experience long-term functional challenges, which are complex, heterogeneous, and multifactorial in nature. Although the importance of rehabilitation interventions after intensive care unit (ICU) discharge is universally recognized, evidence on feasibility and …

2021AlgemeenArtikel

On the bright side

A.T. (Anne) Steenbakkers (Onderzoeker); H. (Hans) Grietens (Onderzoeker); Steffie van der Steen (Onderzoeker)

This study explored what contributes to successful family foster care from the perspective of young people by asking them about their most positive memory of family foster care. Forty-four Dutch adolescents and young adults (aged 16–28) participated in this study and shared their most positive memory …

2020-12-16Mens & Maatschappij; …Artikel

Trajectories of disability and low back pain impact: 2 year follow up of the Groningen Spine Cohort

Dutmer, A. (Alisa) (Researcher); Schiphorst Preuper, HR (Rita) (Phd); Stewart, RE (Roy ) (Phd); Soer, R. (Remko) (Associatelector); Reneman, MF (Michiel) (Professor); Wolff, AP (Andre) (Professor)

Study Design. Prospective cohort study.Objective. The aim of this study was to identify treatment response trajectories in patients with low back pain (LBP) during and after multidisciplinary care in a tertiary spine center, and to examine baseline patient characteristics that can distinguish trajectories.Summary …

2020-12-01AlgemeenArtikel

The Methodological Development of an Interprofessional Educational Program to Provide Proactive Integrated Care for Elders

Linda Smit (Lid Lectoraat); Jeroen Dikken; Marjolein van Wijk (Onderzoeker); Inge Pool; Marieke Schuurmans (Associate Lector); Niek de Wit; Nienke Bleijenberg (Lector)

Background: Interprofessional collaboration in practice (IPCP) between professionals from the medical and social domain within primary care is desirable; however, it is also challenging due to fragmented healthcare. Little is known about the development of IPCP in primary care to fit the implementation …

2020-11-01GezondheidArtikel

Stakeholder engagement from problem analysis to implementation strategies for a patient-reported experience measure in disability care

Marjolein van Rooijen; Stephanie von Helden-Lenzen (Lid Lectoraat); Ruth Dalemans (Lid Lectoraat); Sandra Beurskens; Albine Moser (Lid Lectoraat)

Background: In implementation science, vast gaps exist between theoretical and practical knowledge. These gaps prevail in the process of getting from problem analysis to selecting implementation strategies while engaging stakeholders including care users. Objective: To describe a process of how to …

2020-10-30GezondheidArtikel

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